My youngest son Preston was born with a bilateral cleft lip and palate, which is not a life threating birth defect, and requires a tremendous amount medical care. This has not affected him as far as normal kid stuff goes, yet. He will require a tremendous amount of corrective surgery through the years.
We live in Southern Coastal Georgia and find it necessary to use medical facilities in Jacksonville, Florida for his care because the care in Georgia for cleft lip and palate children is centered in Atlanta and Augusta. However, it does look like that Florida Legislature is taking steps to cut funding for the University of Florida Cleft Palate Team and cut out this program for children all over the southeastern United States.
While I am not a resident of Florida this is a tremendous blow to not only us in Southern Georgia but to the Children in Florida that are affected by this. Children are our future and hopefully the Florida Lawmakers realize that if it were not for these types of programs many children will be affected more than they are already.
4 comments:
your kid will be o.k. i was born with unilateral cleft lip and palate. i have a website at http://cleftlipandpalate.googlepages.com/
Thanks David,
It has been an experience. Other than his clefts he is a normal three year old. I did a page about it at
http://hubpages.com/hub/Your_Child_has_a_Cleft_Lip_Now_What
That reaches out to expectant parents.
Hi Paul, I also have a child with a cleft lip and palate and he is also 3 years old, and unstoppable. I am in Atlanta and the craniofacial team her is very good and dont know what I would have done if we didnt have a team of doctors like them specifically for his birth defect. I know it isnt life threatening but the amount of corrective surgeries required is more than you can imagine when they are born (he has had 4 already). I am looking forward to visiting your web page and see your son. Hope you are all doing well aside from keeping up with a 3 year old.
@curly
Small world I am down on the coast near St. Simmons. We are using a cleft team from Jacksonville, FL.
Thanks for your comments we should connect we are close and have a huge thing in common. :P
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